Educational events
PKD in-person and online educational events
Join our free, friendly and relaxed events — hear from medical experts, get your questions answered, and connect with others who understand life with PKD, in person or online.
View upcoming online and in-person events.
View talks from previous educational events below by topic.
"Understanding more about PKD and the options for future generations were really helpful. I feel much less in the dark now!"
- Attendee
Most Recent Q&As
- ADPKD in Children and Young People by Prof Manish Sinah and Dr Matko Marlais
- Newly Diagnosed with PKD by Dr Matt Gittus
- Transplant in PKD by Consultant Transplant Surgeon, Mr Hussein khambalia
- Anaemia in PKD by Kidney Specialist Nurse, Anne Crompton
About ADPKD
- ADPKD Basics: how ADPKD is diagnosed, its stages, and its causes by Dr Nicholas Annear
- ADPKD and me: the basics by Dr Roslyn Simms
- What is Polycystic Kidney Disease? by Dr Albert Power
- ADPKD in Children and Young People by Dr Matko Marlais
Aneurysms
Diet
- Shake your salt habit! Renal Dietitian Fiona Hunter explains how much salt is too much salt, and offers practical ways to reduce your intake while ensuring your food packs a flavoursome punch!
- 'Role of Alkaline Diet in Kidney Health' by Caroline Passey, Renal Dietitian
- 'PLADO - a plant-dominant, low-protein nutritional approach for chronic kidney disease' by Dr Kam Kalantar-Zadeh
Family Planning and Pregnancy
Lifestyle
Genetics
- Genetics and Genetic Testing: the benefits of testing, interpreting results, and IVF pre-implantation testing by Professor John Sayer
- Genetics: when & who to test by Dr Jackie Cook
- Autosomal Polycystic Kidney Disease genetics explained by Dr Anand Saggar
Polycystic Liver Disease (PLD)
- Talk by Dr Ahmed Elsharkawy, Consultant Transplant Hepatologist, on Polycystic Liver Disease (PLD) followed by a live Q&A
- 'Polycystic Liver Disease (PLD) - a condition with many more questions than answers' by Dr Ahmed Elsharkawy
- Polycystic Liver Disease (PLD) Research Q&A 2023
Progression
Treatment
- 'Tolvaptan: the experience so far (plus patient story)' by Dr Matthew Gittus
- 'Tolvaptan Q&A' with Professor Daniel Gale
- 'What is Tolvaptan and how does it work?' by Dr Grahame Wood
- 'Skin Care for Kidney Patients' by Dr Jacqueline Nevols
- 'PKD & Nephrectomy' by Mr Nicholas Inston and Mr James Barnes
- 'PKD and Hypertension' by Dr Matthew Gittus
- 'Pain in PKD: Causes and Management' by Dr Yuki Heath
- 'Anaemia in PKD' by Kidney Specialist Nurse, Anne Crompton
Kidney Transplant
- 'Matching for Transplant: a guide to Compatibility and Blood Tests' by Dr Judith Worthington
- 'The surgeon and ADPKD: when you need a transplant', Mr Badri Shrestha
- 'Kidney transplant in ADPKD' by Mr Hussein Khambalia
- 'The surgery: retrieval and transplant' by Mr Hussein Khambalia
- 'The Transplant Laboratory: why so many blood tests?' by Dr Judith Worthington
- ‘Matching for Transplant: a guide to Compatibility and Blood Tests’ by Dr Nicola Reid
- ‘The role of the transplant recipient coordinator’ by Mal Greenwood-Morgan
- ‘What to expect on the transplant ward’ by Guy Bradburn
- ‘Transplant medicines explained’ by Sian Ellis
- ‘What happens after you go home/the transplant clinic' by Mr Hussein Khambalia
- 'Renal failure and transplant; the patient's story' by Jane Pugh
- 'Q&A' some of the panel answer audience questions
Living Donation and Kidney Transplant
- 'Living donors: who's eligible and the steps involved to donating a kidney', by Mr Tunde Campbell
- 'Live donor journey: psychological challenges, post surgery follow-up, and employer support', by Sr. Lyndsey Rushton
- 'The road to transplant in living organ donation' by Mr Hussein Khambalia
- The donor's story, by Alexandra Dobbyns and her recipient Martin Cunningham
Research
- 'ADPKD: what the future holds for patients', by Professor Albert Ong
- 'Are kidney Cilia the key to understanding ADPKD?' by Dr Shalabh Srivastava
- ARPKD: an introduction and overview - Dr Larissa Kerecuk, Consultant Paediatric Nephrologist
- What's new in ARPKD - Dr Max Liebau, Consultant Paediatric Nephrologist
- ARPKD and the Liver - Dr Tassos Grammatikopoulos, Consultant Paediatric Hepatologist
- ARPKD: Dialysis and Transplantation issues - Mr Nicos Kessaris, Consultant Transplant Surgeon
- Q&A