What Are the RASopathies?

Learn about the individual RASopathy syndromes

1:1,000 ?

Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

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We often list new studies that are relevant to individuals with a RASopathy syndrome. See these opportunities here and learn why it's important to advance research and how to participate.…
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We had 141 in-person attendees and 16 virtual attendees from a total of 13 countries! See stats...
Beth Stronach and Lisa Schoyer attended the NF Conference in Washington D.C. on June 21-24, 2025. There were numerous opportunities to meet colleagues and raise awareness of the RASopathy syndromes,…

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