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Welcome To IRDiRC
Our vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention
Goal 1
All patients coming to medical attention with a suspected rare disease will be diagnosed within one year if their disorder is known in the medical literature; all currently undiagnosable individuals will enter a globally coordinated diagnostic and research pipeline
Goal 2
1000 new therapies for rare diseases will be approved, the majority of which will focus on diseases without approved options
Goal 3
Methodologies will be developed to assess the impact of diagnoses and therapies on rare disease patients
Latest News
New IRDiRC Publication – Regulatory sandboxes: A new frontier for rare disease therapies
Regulatory sandboxes are emerging as a powerful tool to accelerate innovation in healthcare,…
New IRDiRC Publication: "What Matters Ethically About How the UDN Has Changed Since Its Inception"
IRDiRC is pleased to share a new publication "What Matters Ethically About How…
New IRDiRC Publication: “Applying the international rare disease research consortium (IRDiRC) N-of-1 therapy task force eligibility criteria for individualised therapies use case: Duchenne muscular dystrophy”
IRDiRC announces publication of a new manuscript, developed as part of the International Rare…