Our mission is to improve the lives of those living with osteogenesis imperfecta through research, education, awareness and mutual support.
The Osteogenesis Imperfecta Foundation, Inc.
(OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta.
The OI Foundation is Here for You
Programs and resources of the OIF help individuals and medical professionals understand osteogenesis imperfecta.
Help Move OI Research Forward
Supporting research is an important part of the OI Foundation’s mission.
Participate in OI Studies
Participation in OI research helps advance the scientific understanding of OI so that more and better treatments can be made available to the OI community.
Enroll in the OI Registry
Once you are enrolled, you will begin to receive information on upcoming studies and online surveys about OI.
OI Publication Library
View a collection of published OI research.
Take Action
Support the mission of the OI Foundation by raising
OI awareness or hosting a fundraiser.
Raise Awareness
Raise OI awareness in your community, host an event, or create a Facebook fundraiser!
Become A Member
Members are the heart of our organization.
Donate
We are so thankful for your support!
Bringing OI community members together at OIF Conferences
OIF Conferences are educational and social experiences for families and individuals living with osteogenesis imperfecta.
OIF National Conference:
Orlando, FL: July 23-26, 2026
OIF Regional Conferences:
Portland, OR: October 11, 2025
Latest News & Updates
Community Call: BBDC Research Update 12/4
Participate in Giving Tuesday on 12/2!
Physical Therapy, Exercise, and OI Recording Now Available!
RESEARCH UPDATE: Somewhere To Go
Brittle Bone Disorders Consortium (BBDC) Renewal
IMPACT Survey Update – Caring for an Individual with OI
Helping our community stay up to date and connected.
Please sign up to receive updates from the OI Foundation including our monthly e-Newsletter, research updates, and upcoming event information.
