When Alexandra was first diagnosed with myotonic dystrophy (DM1) at just 11 years old, she thought her struggles in school meant she wasn’t trying hard enough. Her teachers believed the same. "I thought muscles stiffening up and not being usable was normal, because I didn’t know any different," she recalls. The truth came with genetic testing: Alexandra wasn’t lazy. She was living with DM1. What Alexandra longed for most wasn’t just medical answers — it was connection. Through a local

When Michel was first diagnosed with myotonic dystrophy (DM1), his neurologist gave him one piece of advice: "Stay strong. Stay active." Michel took those words to heart. Within a year of his diagnosis, under medical supervision, he crossed the finish line of a full marathon — showing his children that

As you prepare to gather with your loved ones this holiday season, we want to share Julie’s story with you. It’s a story of resilience, community, and hope — and a powerful reminder of why your support matters so deeply. About 15 years ago, Julie’s husband, Michel, and their daughter,

Muscular Dystrophy Canada together with the Neuromuscular Disease Network for Canada (NMD4C) are excited to announce the recipients of the Clinical Fellowship funding competition, which awarded national clinical fellowships in neuromuscular medicine. This competition received many incredible applicants and involved an extensive review by leading Canadian neuromuscular researchers and clinicians